5 discussions tagged #Chronic Illness.
I've been recently prescribed Procysbi 75mg Oral Granules to manage my nephropathic cystinosis. I've read about the potential side effects, some of which are quite serious, and I'm a bit ner…
I've been on Remodulin for about a year now to manage my pulmonary arterial hypertension (PAH). It's been a journey, to say the least. The continuous infusion can be challenging, but it's ma…
I was diagnosed with hypophosphatasia (HPP) a few years ago, and it's been a rollercoaster. My doctor prescribed Strensiq 28mg/0.7ml injections to help manage the condition. I've been using…
I've been using Zemaira 5000mg Inj for the past year to manage my alpha1-antitrypsin deficiency. This medicine has been a game-changer in protecting my lungs from further damage, but it also…
I was recently prescribed Vpriv 400unit Inj, 1 Vial for my Gaucher disease type 1. I've been getting these infusions every two weeks, and I've noticed some improvements in my symptoms, like…