5 discussions tagged #Chronic Illness.
I've been using Zemaira 5000mg Inj for the past year to manage my alpha1-antitrypsin deficiency. This medicine has been a game-changer in protecting my lungs from further damage, but it also…
I've been recently prescribed Procysbi 75mg Oral Granules to manage my nephropathic cystinosis. I've read about the potential side effects, some of which are quite serious, and I'm a bit ner…
I was diagnosed with hypophosphatasia (HPP) a few years ago, and it's been a rollercoaster. My doctor prescribed Strensiq 28mg/0.7ml injections to help manage the condition. I've been using…
I was recently prescribed Vpriv 400unit Inj, 1 Vial for my Gaucher disease type 1. I've been getting these infusions every two weeks, and I've noticed some improvements in my symptoms, like…
I've been on Remodulin for about a year now to manage my pulmonary arterial hypertension (PAH). It's been a journey, to say the least. The continuous infusion can be challenging, but it's ma…