12 discussions tagged #PKU.
I've been on Sapropterin 100mg for a few months now to manage my PKU and BH4 deficiency. It's been a game-changer in terms of allowing me to have a less strict diet. However, I've had a few…
Hello everyone, I was recently prescribed Sapropterin 100mg Tablets to manage my Phenylketonuria (PKU). I've been taking them for a couple of months now, and I wanted to share my experience…
Kuvan 100mg Tablets, containing sapropterin, have been a significant development in managing Phenylketonuria (PKU) and hyperphenylalaninemia. By helping the body break down phenylalanine, it…
I've recently been diagnosed with PKU and my doctor has prescribed Palynziq 20mg/ml Inj, 1ml to help manage my phenylalanine levels. I'm really nervous about the side effects, especially the…
Hello, Reddit! I was recently diagnosed with PKU and started using Palynziq 2.5mg/0.5ml Inj, 0.5ml. I'm looking for some insights and experiences from others who have been on this medication…
I've been prescribed Kuvan 100mg Powder For Oral Sol for my PKU. I'm trying to get a plan together now, but all the info seems overwhelming. I know Kuvan helps break down phenylalanine, but…
I've recently been prescribed Sapropterin 500mg for my PKU. I've heard it can be a game-changer for managing phenylalanine levels, but I'm a bit concerned about the potential side effects. H…
PKU, Phenylketonuria, is a rare genetic disorder that requires careful management. Javygtor (sapropterin) offers hope by helping the body break down phenylalanine, but it comes with potentia…
Since PKU is a difficult and nuanced condition to manage, I'm wondering if anyone on the forum has been on Palynziq for a while. How has it affected your life? I've been on it for a few mont…
I was diagnosed with PKU (phenylketonuria) a few years ago, and managing my phenylalanine levels has been a daily challenge. My doctor recently prescribed Sapropterin 100mg Tablets, a medica…
Kuvan 500mg Powder is a crucial medication for those dealing with Phenylketonuria (PKU) or BH4 deficiency. By helping the body break down phenylalanine more effectively, it lowers the levels…
I've been on Sapropterin 100mg for a few months now, and while it's been great for managing my PKU, I've noticed some side effects that I didn't expect. Has anyone else had issues with frequ…