Parents of kids with Smith-Magenis, have you tried Hetlioz LQ 4mg/ml Suspension for sleep issues?
I've heard great things about how Hetlioz LQ can help regulate a child's sleep-wake cycle, especially for kids with conditions like Smith-Magenis Syndrome who struggle with sleep. I've been considering it for my daughter, but I want to know more about others' experiences. What are some of the side effects you've dealt with? Has anyone had to stop using it? How has Hetlioz LQ helped your kids long-term? Any tips on finding the right dosage? What was your experience with side effects?
We started Hetlioz LQ a few months ago after struggling with sleepless nights for years. The first week was tough because of some bad dreams but after that, her sleep schedule started to improve. It's really helped with her mood and overall well-being. We haven't had any major side effects, but make sure to keep an eye out for those UTIs.
Glad to hear it's working for some of you. I wish my insurance would cover it. It's so expensive otherwise.
Just started Hetlioz LQ this week. Fingers crossed it works as well for us as it has for you all. I'll keep you posted!
Did anyone try it and have no success? My kid still struggles with no changes because of this.
This stuff is a lifesaver. No more midnight screaming fits for us