Parents of children with achondroplasia: Have you tried Voxzogo 0.56mg Injection?
I've recently learned about Voxzogo, a daily injection treatment designed to help children with achondroplasia grow taller. This condition affects bone growth, leading to short stature, and Voxzogo aims to correct the way bone cells grow. I'm considering it for my child but want to hear from other parents who have experience with this treatment. What has been your experience with Voxzogo? Have you noticed significant growth in your child? How have they dealt with the daily injections? And what about side effects? I've read about both urgent and other possible side effects, but I'd love to hear firsthand accounts. Any tips on making the injection process easier would be greatly appreciated!
My son has been on Voxzogo for six months, and it's been a game-changer. He's growing more steadily, and his doctor is thrilled with the progress. He did have some vomiting in the beginning, but we managed it with smaller, more frequent meals.
My kid has been on Voxzogo for three years and has seen a notable increase in height. We've had to deal with flu-like symptoms occasionally, but it's manageable. The growth spurt has been worth it. Keep a close eye on injection sites and keep an open line of communication with your healthcare provider.
We had to stop Voxzogo after my child had a bad reaction. It was devastating, but safety first. Every kid is different. Be vigilant.
We started Voxzogo a year ago, and my daughter has shown some growth. The injections are tough, but we've found that distraction methods like watching her favorite cartoons help a lot. She's had some injection site redness, but it goes away quickly. Definitely monitor for side effects but don't be too alarmed.
I did some research, and the side effects can be scary but are very rare. I'd say just monitor closely and stay in touch with your doctor. My kiddo is doing okay so far.
My doctor says Voxzogo is a breakthrough. Just be prepared for possible side effects and stay in constant communication with your medical team. My kiddo is doing well so far.
Just started Voxzogo last month. So far, so good. No major side effects, but my daughter has been a bit tired. Keeping an eye on her energy levels. How do you all cope with the daily routine? Any tips?
Voxzogo vs. traditional treatments? This is a very real consideration. Has anyone balanced both treatments? Or gone completely one way or the other? Would love to hear more from those on this journey.
Keep us updated on your journey! It's comforting to know we're not alone in this. Plus, kids are resilient. They'll manage with your support.
Such an interesting drug. I’ve been researching similar treatments and this seems like a step in the right direction. Good luck to all of you!