Living with CSID: Sucraid experiences and tips?
I've recently been diagnosed with Congenital Sucrase-Isomaltase Deficiency (CSID), a condition I've likely had for a while, so I'm still learning to manage it. My doctor prescribed Sucraid 8500u/ml Oral Sol to help digest sucrose and reduce symptoms. I'm very curious to hear about other people's experiences with this enzyme replacement therapy. What kind of results have you seen? Have you had to make significant diet changes? How do you incorporate Sucraid into your daily routine? I'd appreciate any tips or advice for managing this condition and living healthily with CSID.
Be careful with sweets, even if you take Sucraid, is the best advice I can give. Keep a food diary, it’ll help. I can tell you from personal experience. I had a sugar induced stroke episode.
I've been on Sucraid for a few years now. It's really helped with the stomach pain, but I still have to be careful about my sugar intake. Eat in small portions, you may find it helpful.
Just make sure to report any side effects to your doctor. They may be able to adjust your dosage or suggest other ways to manage them.
I’ve had CSID since birth and my mom always had to check labels for me. I’m really glad they came out with Sucraid, but it can be pricey. Make sure your insurance covers it, especially if you're on a budget. There's also a support group online. You should join.