Living with Alpha-1 Antitrypsin Deficiency: My Experience with Aralast NP Infusions
I was recently diagnosed with Alpha-1 Antitrypsin Deficiency and started taking Aralast NP 500mg Inj, 1 Vial. It's been a few months, and I wanted to share my experience. The infusions are once a week, and while it's a bit of a hassle, it's manageable. I've noticed some side effects like fatigue and muscle pain, but nothing too severe. What has been everyone else's experience? Any tips for managing side effects? Has anyone else noticed improvements in their lung function?
If you experience any severe side effects, head straight to the ER. You'd rather be safe than sorry.
I had a severe allergic reaction after my first infusion. It was scary, but thankfully the medical team was prepared. If you're just starting out, make sure to be in a place where you can get help if you need it.
I feel like the infusions have helped slow down the progression of my emphysema. It's hard to tell for sure, but I feel better overall. Keep at it, and hope for the best!
I've been on Aralast for a while and noticed that if I eat a light meal beforehand, I tolerate the infusion better. Might be worth a try!
I'm not sure if it's just me, but I feel like the infusions make my skin a little itchy. I'm trying to figure out if it's related to the treatment or something else.
Anyone try Aralast NP and notice any improvement in energy levels? I am always so exhausted after my treatments.