Just started Ogsiveo 100mg Tablets for desmoid tumors - anyone else on this med?
I was recently diagnosed with a desmoid tumor and my doctor prescribed Ogsiveo 100mg Tablets. The medication works by blocking the Notch pathway, which helps control cell growth. I'm hoping to hear from others who have experience with this drug. I'm particularly interested in the side effects and how they were managed. Has anyone had any serious side effects like allergic reactions, liver problems, or electrolyte imbalances? Also, how did you handle common side effects like stomach pain, diarrhea, or hair loss? Any tips on managing these would be greatly appreciated!
Just started Ogsiveo last week. Fingers crossed for me!
I had an allergic reaction to Ogsiveo. I developed a rash and had trouble breathing. Scary stuff. If you experience anything like that, seek medical help immediately.
I've been on Ogsiveo for about 6 months now. The side effects were rough at first, especially the stomach issues. I had to take medication for diarrhea and upset stomach, but it got better over time. I didn't have any serious side effects, thankfully. Just stick it out, and make sure to keep your doctor informed.
I've been on Ogsiveo for about 3 months now, and I've had some serious side effects like electrolyte imbalances. It's been a real struggle, but my doctor has been monitoring me closely. I've had to adjust my diet and take supplements to manage it. It's definitely not easy, but it's worth it if it helps with the tumor.
I had a similar experience. The first few weeks were tough, but it's manageable. Just remember to take it easy and listen to your body. Also, drink plenty of water and eat light, frequent meals to combat the stomach issues.
Ogsiveo worked well for me, but I had to deal with some high blood sugar levels. It was tough, but I managed it with diet and exercise. Just be vigilant with your health checks.
Has anyone else experienced hair loss? I'm losing a lot of hair, and it's really getting to me.
Be careful with this med. I had some serious skin changes and had to stop taking it.
Ogsiveo is a game-changer. I was really struggling before I started taking it, but now I feel like I have my life back.