Has anyone tried Ogsiveo 50mg Tablets for desmoid tumors? Share your experience!
I recently started taking Ogsiveo 50mg Tablets to treat my desmoid tumors. This medicine works by blocking the Notch signaling pathway, which is supposed to help stop the growth of these tumors. I take it twice a day by mouth, as prescribed. I'm curious to know if anyone else has tried this medication and what their experiences have been like. Have you noticed any significant changes in your tumor growth? What side effects have you encountered, and how have you managed them? I'd love to hear from anyone who has more information about the long-term effects and overall effectiveness of Ogsiveo!
I've been taking Ogsiveo, and while the side effects have been manageable, it's a lot of work. Multiple appointments, frequent blood tests, and constant monitoring. But if it works, it's worth the trouble.
Anyone else feel super tired all the time? I can't tell if it's the medication or just the cancer itself.
Be careful with the electrolyte problems. I had some muscle cramps and weakness at first, but my doctor adjusted my electrolyte intake and it got better. Definitely keep an eye on that!
Been on Ogsiveo for a few weeks now. The doc says it can take a few months to see results, but the hair loss is brutal. Anyone have tips for dealing with it?
I'm new to Ogsiveo, wondering if anyone has tips on how to manage the stomach issues? I can't keep a meal down.