Has anyone had experience with Kisqali? I'm curious about the side effects and how it's affected your life.
I've just been prescribed Kisqali 200mg Tabs (blister Pk)21 (for those in the same boat, this is used to treat a certain type of advanced breast cancer in women). I was wondering if anyone has experience with it and can share their experiences with the drug's side effects. I know it can cause a lot of different side effects, some of them quite serious, but I want to hear from people who have been through it. How did you cope? Did you experience any of the severe effects? Anything you wish you'd known before starting? Any tips for managing the side effects?
I had a severe allergic reaction to Kisqali after just a few weeks. It was scary. I ended up in the hospital with hives all over my body and trouble breathing. If you experience any of those symptoms, don't wait, go to the ER immediately. It's better to be safe.
I'm on my fourth month of Kisqali and it's been a rollercoaster. The fatigue and hair loss were expected, but the mouth sores caught me off guard. I have a few tips for managing them: I've found using a soft toothbrush and a mouth rinse with saltwater and baking soda helps a lot. I also tell everyone to always carry lip balm! Stay hydrated and, if you can, try to eat softer foods. It really helps to avoid scratching them. Have you looked into any clinical trials?
I've been on Kisqali for about 6 months now. The worst part for me was the nausea, but my doctor gave me some anti-nausea medication that helps a lot. I also found that eating smaller, more frequent meals helped. But honestly, the hair loss was the hardest to deal with. I wish I had known how much it would affect my mental state. Besides that, I'm managing alright. Stay strong!
My advice for anyone starting Kisqali is to stay in close contact with your doctor. If you experience any side effects, even if they seem minor, let your doctor know immediately. I had some back pain that I thought was just from stress, but it turned out to be a UTI. Don't tough it out – communicate with your medical team. You're all warriors!
Kisqali has been a game-changer for me. My tumor markers have been decreasing steadily, and I've had no major side effects so far. I know everyone is different, but I wanted to share some hope. Fingers crossed for all of you!
I've been on Kisqali for a while and I’ve found that the fatigue is the hardest part. I literally sit on the couch and can't move. But honestly, I'd rather feel like this than deal with the alternative. I hope everyone here is doing okay.
I've been on Kisqali for a year now and have had to deal with some of the more serious side effects. I've had several UTIs, and my doctor says it's because of the medication. If you start to feel any burning or pain while urinating, get checked out immediately. It's not fun, but it's manageable. My oncologist also helped me keep an eye on my liver function regularly. I'm managing okay, and this isn't about me. I'm here for you!
I've heard some people have issues with Kisqali and blood clots. Anyone else experience this? I've been wanting to know more about it, but I can't find anyone who talks about it. My doctor never mentioned it either.
I've been on Kisqali for about 3 months now, and I've had some pretty bad constipation. Anyone else deal with this?
I'm so sorry everyone is going through this, but I'm glad to have found this thread. I've already ordered a saltwater and baking soda mixture after the advice above. I'm on my second week of Kisqali, and I've already noticed some mouth irritation. Here's hoping it gets better. Fingers crossed!