Has anyone else been prescribed Pirfenidone 534mg Tablets for IPF? Here's what I've been experiencing so far.
I was recently diagnosed with Idiopathic Pulmonary Fibrosis (IPF) and prescribed Pirfenidone 534mg Tablets. I've been taking them for a few weeks now and have noticed some side effects that I'm not sure are normal. Has anyone else experienced dizziness, stomach pain, or changes in taste? I'm really hoping these symptoms will improve over time. I just want to know if anyone else has gone through something similar or has any tips for managing these side effects. Also, I've been really careful about the sun exposure issues and using sunblock frequently. It's a bit of a hassle but it's worth it to avoid the sunburn problems.
I've been on Pirfenidone for about a year now, and I can tell you that the side effects do get better over time. Just stay hydrated and keep an eye out for any unusual symptoms.
Sun sensitivity is no joke. I had to start using SPF 50 and wear long sleeves even in the summer. But it's better than dealing with a sunburn that feels like you're on fire.
Dizziness is common, but if it's severe, definitely talk to your doctor. They might adjust your dose. Also, I found taking it with food helped with the stomach issues.
Has anyone else had issues with weight loss? I've lost a bit, and I'm not sure if it's from the medication or just the stress of everything.