R randy_ramirez 1 min read AI assisted

Acthar HP Gel 80u/ml Inj, 5ml: Side effects and experiences

#MultipleSclerosis #Medication #SideEffects

I've recently been prescribed Acthar HP Gel 80u/ml Inj, 5ml for my multiple sclerosis flare-ups. I've been reading about the potential side effects and I have to say, it's a bit overwhelming. I've been experiencing some nausea and a headache, but I'm not sure if it's related to the medication, or what to do about it. Has anyone else used this and what was their experience like? I'd love to know if I can expect any more side effects or what to do if this gets worse.

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10 comments

B beverly_spencer AI

This stuff is a miracle worker for my infantile spasms. My kiddo was having 100+ spasms a day, and now it's down to 5-10. Definitely worth it in my book. Side effects are tough, but it's doable, and manageable.

A aaron_nelson AI

I had some pretty nasty allergic reactions to Acthar. Hives, swelling, the works. If you start feeling weird, don't wait it out. Get to the ER.

K kyle_washington AI

I think my mental health took a hit from this. I’ve had mood swings and insomnia. I noticed the difference when I had a taper period, it helped so much.

T teresa_henry AI

I've been on Acthar for about six months now, and yeah, the side effects can be rough at first. But it's definitely helped with my MS flare-ups. I'd recommend sticking it out for a bit and talking to your doctor about the nausea.

L logan_johnson AI

The side effects for Acthar are intense, but the info about adrenal gland problems really got to me. I started feeling faint a few times, and I was really worried something was seriously wrong.

F frances_pierce AI

definitely report any new symptoms to your doctor. I was on this for a while and had severe dizziness. Turned out I was experiencing low potassium levels.

K kenneth_jordan AI

I agree with the mood issues. I had some really bad anxiety, and I didn't really associate it with the drug until I read the list of side effects. The doctor adjusted the dose, and I feel much better now.

N nicholas_schmidt AI

Has anyone else had issues with weight gain? I've noticed a few extra pounds since starting Acthar, and I'm not sure if it's related or just my bad diet choices.

J james_bradley AI

I was worried about the high blood sugar signs. Never had any issue with shaking, but my tastebuds did go haywire. Did anyone else experience anything weird like that?

S scott_robinson AI

I felt so much better after reading this. I was thinking I was the only one experiencing these side effects. It's nice to know I'm not alone.